Albinism: Foundation seeks government funding, political inclusiveness


THE Federal Government of Nigeria has been asked to create a budget line for persons with disability (PWD) and Albinism, in order to give them a sense of belonging in the country.

In the vein, the Country Director of CMB, an International Christian Development Organization, Mr Bright Ekweremadu, called on government to appoint persons with disability in governance positions as a way of creating  a society with equal opportunities and inclusiveness for persons with any kind of disability.

The founder of The Albino Foundation (TAF), a non-governmental organization (NGO), Mr Jake Epelle, Thursday, said that it was important that the Government provides funds to implement various projects that would improve the lives of people with such condition in the country.

Epelle made the appeal at the 2019 National Conference on Albinism and International Albinism Awareness Day, in Abuja.

According to reports from the News Agency of Nigeria (NAN), the International Day, which is an annual event on June 13,  is to improve the awareness and response to challenges of persons with albinism and their families.

The event themed “Still Standing Strong, Advancing the Albinism Cause” aims to build the capacity of persons with albinism.

Epelle said: “We have access to social services but no direct funding from the government; we want the government to fund albinism projects all over the country.

“This can be done either through The Albino Foundation or through various ministries that can honestly intervene and provide the services we need.

“The government needs to fund the service givers, just like our counterparts, the Kenya Government gives the Kenya Albinism Society $1 million every year.

“The Liberian Government gives the Albinism society $300,000 every year,  South Africa gives $800,000, while seven other African countries support the Albino society in their countries.

“We want to gain more grounds in partnering with the government in reviewing the policy on Albinism. Presently we are working with eight ministries and 15 parastatals.”

He commended the government for giving a voice to young and aged persons with Albinism as well as addressing issues of persons living with disabilities.

He noted that the event would build the capacity of persons with albinism to enable them believe in themselves and become better persons in the society.

Mr Bright Ekweremadu noted further: “The people with disabilities have disability in areas of the eyes and skin. We are ensuring that persons with disability are not discriminated against, but brought into national focus.

“As an organisation, we are committed to improving the quality of life of people with disability in the poorest communities in the world.

“We want Nigerians to celebrate Albinism; it is not a defect, it’s a condition, and they are normal people like every one of us. Let’s show love to them.”


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